Resources

Here are some helpful links to agencies, organizations and documents addressing issues related to cerebral palsy for both consumers and professionals.

Consumer/Medical Information

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California Children’s Services
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California Regional Centers
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Reaching for the Stars
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Stem Cell Research Fact Sheet
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Tarjan Center for Developmental Disabilities at UCLA
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UCLA Intervention Program
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United Cerebral Palsy
CP Alliance The Australia-based organization funds cerebral palsy research in Australia and overseas through their Research Foundation. They also share the results of recently published research in the management and prevention of cerebral palsy
The American Academy of Cerebral Palsy and Developmental Medicine The American Academy of Cerebral Palsy and Developmental Medicine is over 1,100 health professionals dedicated to providing multidisciplinary scientific education and promoting excellence in research and services for the benefit of people with and at risk for cerebral palsy and other childhood-onset disabilities
Cerebral Palsy Foundation CPF is the largest non-government funder of cerebral palsy research in the United States. It collaborates with scientists and researchers throughout the world in cerebral palsy and shares the work with others so that it may have the greatest impact
Red Star Riders This non-profit organization was founded by pediatric physical therapists to help create mobility and independence for physically and developmentally challenged children in the greater Los Angeles area
CPNow, is a consumer organization that offers a free “CP Toolkit”, and an informational booklet for parents or loved ones of children with cerebral palsy.

 Recreation/Fitness Resources

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Adaptive Tricycles
A brief guide of features and considerations for children with CP
 casacolina Casa Colina Outdoor Adventures – a program that focuses on empowering people with disabilities by creating opportunities through challenging and exciting activities
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Exercise and Recreation Resources in the Los Angeles area
 IFC Inclusive Fitness Coalition – a cross-section of the disability rights, sports, health/fitness and civil rights communities dedicated to promoting equitable access to, and safe use of, fitness and recreational equipment, facilities, and programs
 NHCpad National Center on Health, Physical Activity and Disability – links to ongoing program fitness and exercise initiatives across the nation. Includes items on health promotion and nutrition, research and videos of adaptive sports, recreation and access
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Special Olympics
HOW DO I BECOME A PARALYMPIAN-2017
Schedule for the 2107 US Paralympic Track and Field trials being held in Los Angeles, CA in June 2017”
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US Adaptive Recreation Center
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UCLA Adaptive Recreation Program
Angel City Sports

 Equipment/Clothing

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ABLDenim
– jeans for children and adults with physical disabilities, also offers tailoring services to adapt clothing to individual physical needs
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Adaptive Mall
 – a catalogue of adaptive cycles and other equipment for people with disabilities
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Hatchbacks
– specialized sneakers and shoes for children that are easier to put on and take off, with or without AFOs
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Keeping Pace
– shoes for children and adults with AFOs or adaptive footwear

 

 

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